Lupus, But You Don’t Look Sick
By Olivia Salter
Word Count: 1,243
It was the third family barbecue of the summer, and Cierra could already feel the weight of everyone’s eyes—even though no one was looking at her directly.
The scent of charred ribs and sun-warmed potato salad curled through the air. Frankie Beverly crooned from a Bluetooth speaker someone had balanced on the porch railing. Cierra sat under a patchy strip of shade, her oversized sunglasses hiding the dark hollows beneath her eyes. The warmth of the Georgia sun pressed against her skin like judgment.
“You should really try moving more,” Aunt Sheila said, handing her a plate loaded with macaroni and ribs. “I read an article that said people with those autoimmune things just need to build up their stamina.”
Cierra blinked. “It’s not that simple. Lupus—”
“Yeah, yeah, I know,” Aunt Sheila cut in. “But back in my day, we just walked it off. Pain is just weakness leaving the body, baby.”
She wanted to scream. Instead, Cierra set the plate on the ground beside her untouched and pulled her cardigan tighter around her arms, even though it was nearly 90 degrees.
Her body was a battleground. Her joints ached. Her skin flared with rashes after too much sun. Some days her hands didn’t work right—gripping a pen or opening a bottle felt like climbing a mountain. There were mornings when her legs simply refused to move. And the fatigue—it wasn’t just tiredness. It was bone-deep exhaustion, like she had to swim through concrete to sit up in bed.
Yet every time she tried to explain, her family met her with confusion or unsolicited advice.
“You still on that medicine?” Aunt Sheila’s voice sliced through the buzz of chatter. She plopped down beside Cierra, fanning herself with a paper plate. “You know, you really oughta try yoga. I saw this girl on TikTok—swore her lupus disappeared after she cleaned up her diet and started meditating.”
Cierra forced a smile. “That’s not how it works.”
Aunt Sheila waved her off. “I’m just saying. Your body needs to move. You can’t let yourself stay down. You young—you bounce back.”
Cierra looked at her aunt’s acrylics glinting in the sunlight, imagined how it would feel to explain—again—that her immune system was attacking her own organs. That sometimes her heart beat irregularly just from climbing stairs. That movement wasn’t always an option.
But she said nothing. She was too tired to educate today.
“Hey!” Uncle Royce yelled from the grill. “Cierra, you still drinking all them sodas? I told you—cut that mess out and your body will thank you.”
“I haven’t had soda in months and I can drink them if I want to, doc said so,” she said flatly.
Dana, her cousin with perfect edges and even more perfect opinions, strolled by with a red cup and a sideways smile. “I had a co-worker with something like that. She stopped eating red meat and gluten, and it went into remission. Maybe it’s worth a try?”
Cierra flinched. She hated the word: “something like that.” Lupus wasn’t a category. It was a condition. A war.
She stood up slowly, knees stiff, ignoring the dull heat behind her eyes. The heat meant her body was inflamed again. She shouldn't have even come. But when she skipped family events, people talked. When she showed up, they still talked.
Inside the house, her mother was pulling a pie out of the oven.
“You didn’t eat a thing,” her mother said, not turning around. “You need to keep your strength up.”
“I’m nauseous,” Cierra said. “The meds mess with my stomach.”
“Well, you can’t just waste away, baby,” her mother huffed. “All you do is sleep. You’ve got to fight through it.”
Cierra gripped the edge of the counter to steady herself. “Mama,” she said, quiet but firm, “you keep acting like I’m not trying. Every day I wake up and push through pain you don’t see. I take meds that wreck my body just to slow the disease down. I show up here today when I should’ve stayed home in bed. And all I hear is how I’m not doing enough.”
Her mother turned, lips pursed, eyes unsure. “I just don’t want to see you give up.”
“I’m not giving up,” Cierra whispered. “I’m surviving. But it feels like I have to prove I’m sick every time I walk into a room.”
There was silence. Her mother opened her mouth, then closed it. “I guess... I don’t understand,” she finally said. “You don’t look sick.”
Cierra pulled up the sleeve of her cardigan, revealing the faint purple rash on her arm. “That’s the thing. I hide it so y’all don’t worry. But I’m tired of hiding.”
Her mother didn’t speak. Just stood there, holding the pie, like if she focused hard enough, she could make this conversation go away.
Cierra clenched her jaw. “I’m on steroids, Mama. They make me swell up and shrink depending on the week. I can’t control it.”
Her mother waved a hand. “Don’t be so dramatic. You just need to pray more and get some rest.”
“Mama,” Cierra said softly, placing her palms on the counter. “I have lupus. It’s not the flu. It’s chronic. It’s for life. Rest doesn’t cure it. Prayers don’t stop the inflammation in my organs.”
Her mother turned toward her slowly. “But you don’t look sick.”
Cierra felt the words like a slap.
Because she had learned how to look well. To cover up the scars. To smile when her body screamed. To say, “I’m fine,” even when she wanted to cry. Because if she looked sick—really sick—they would treat her like a stranger. And if she looked well, they refused to believe her.
“I’m tired, Mama,” she said. “Not just from lupus. From having to explain it all the time. From being told I’m lazy. From being treated like I’m weak because I ask for help.”
Her mother’s eyes softened. “I didn’t mean it that way.”
“But it still hurts,” Cierra whispered.
They stood in silence, the hum of the fridge filling the room. For once, her mother didn’t have an answer.
She turned to leave, heading toward the door, her cardigan still tight around her.
“Where you going?” her mother called.
“Home,” she said. “To rest. Because I have a chronic illness, not an attitude problem.”
She didn’t say it in anger. She said it as a boundary. As truth.
“I need to rest,” Cierra said. “Not because I’m weak. Because I’m sick. And I shouldn’t have to apologize for that.”
She walked outside, the sun low in the sky now, the laughter behind her like a distant radio station. She made it to her car and sat behind the wheel, letting the air conditioning blast. Her body throbbed in places that had no business hurting. She was exhausted, but it wasn’t the kind sleep could fix.
Her phone buzzed.
Mom: I don’t know how to help you. But I want to try. Can we talk this week? You can show me what you’re dealing with. I’m sorry.
Cierra stared at the message for a long time.
She didn’t respond right away. She wasn’t ready to carry anyone else’s learning curve. But it was a start.
And for the first time in a long time, she felt like someone was finally trying to meet her where she was—rather than drag her somewhere she couldn’t go.